Singing in a Storm: My personal story about rising above the challenges of being a teen with a complex rare disease. Published on October 20, 2016 on the Autoinflammatory Alliance blog (saidsupport.org) that has a large global following.

I wrote this story first as a personal narrative, but it evolved into an article that helped to inspire thousands of patients with autoinflammatory diseases, especially children and young adults with these serious, chronic conditions. Please read my storyhttp://saidsupport.org/singing-in-a-storm/ here.